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I am going to immerse myself in the outstanding event Hues for Hope, which will be held in Tulsa city. This show benefits the Global Foundation for Peroxisomal Disorders organization by raising money to advance treatment alternatives for peroxisomal disorders. This is an event what will fall under the impacted by a rare terminal condition category of the spectrum of diversity due to my attachment to charity activity.
I decided to immerse myself in the voluntary organization because I have a particular attitude to people, especially children, with peroxisomal disorders, who need help and support of the Global Foundation for Peroxisomal Disorders, or GFPD. I chose to immerse myself in the discovering capabilities of GFPD as the well-known voluntary community whose goal is to support and help children and their families experienced hard times related to the diagnosis of peroxisomal disorder. Currently, the surrounding community of Tulsa city faces challenges regarding manifestations of paroxysmal attacks on a periodic basis. This disorder presents a common and complicated neurological disorder influencing individuals of all ages.
However, I selected the Hues for Hope event intentionally because it mostly considers children affected by the hideous disease, which is also known as PBD, and aims to celebrate these little patients influenced by the rare illness by raising money for their treatment. Recently, I got to know some sick children, who became my friends; therefore, I realize how it is difficult to experience a sudden frequency or aggravation of symptoms, such as seizures and spasms, constantly. I am very interested to communicate, support, and help the patients with the same diagnosis, considering that the Hues for Hope event conceives an original art performance made by Oklahoma artists and people faced with peroxisomal disorders and will involve art topical games and live auction handcrafted items, visiting the Woody Guthrie artefact, dinner, and an open barroom. The celebration is expected to be incredibly beautiful and cheerful and I think that such experience will be significant for me by immersing myself in the inviting atmosphere and culture of charity, together with the original art show.
I plan to visit the Hues for Hope event, which benefits the Global Foundation for Peroxisomal Disorders, the organization that focuses on help, support, and treatment of families and children overcame a Peroxisome Biogenesis Disorder. I am going to attend the performance, which will last three hours, on Friday, October 5th, 2018 at six pm. The occasion will take place in the Pearl District Building in Tulsa Downtown. The address of the Building is 1209 E 3rd St, Tulsa, OK 74120, USA. I discovered this place and its schedule on the Internet by surfing the Pearl District Building’s official website. I selected this particular location because it is the most exciting wedding venue in Oklahoma that draws attention. Furthermore, I emphasized their website, which is full of required information, illustrations, and useful tips. Unfortunately, I need a prior approval from this location to attend. I know this information accurately because the provided by the events organizators scheduling data includes the ticket price that costs 75$.
I have not any assumptions and preconceived notions about the group of people I am going to immerse myself in. I define the Global Foundation for Peroxisomal Disorders organization as the most open-hearted, kind, and generous society that takes care of children and families faced with disorders. Moreover, I think that each visitor represents a moral human being, who deeply sympathizes with people affected by the peroxisomal disorders. The only one attitude toward and opinion that I maintain regarding the particular group of people involves only a positive and pleasant impression.
There are few definite considerations that I have to manage during my immersion process. Firstly, I know that I should hold my telephone on silent mode but I can to use it while meeting to make some photos or note significant information. Secondly, I will have to dress in the formal style due to the event’s description; therefore, I can not wear a T-shirt or jeans. The majority of people, who will attend the performance will be the members of benevolent society, who are reputable and honoured representatives of the upper class. Therefore, the last thing I need to maintain is the appropriate congruent behavior and handsome manners to leave the pleasant impression. SourcesI called the Pearl District Building, the well-known wedding venue in Oklahoma, and talked to the secretary. I told her that I am going to visit their location to find the best setting for my future wedding but I also told that I was never presented at a wedding ceremony yet. In addition, I did the Internet search about weddings so I could know a little more about what to expect.
There are many things that I want to learn and capture the benefits of my experience; thus, while my growing up I did not pay enough attention to people with disorders because my education did not consider the idea of concern for other people’s well-being. The first time I truly realized my mistake was during the summer holidays when streets were full of children, including those with the peroxisomal disorders. My parents did not maintain a negative attitude to these people, they only were nonchalant about them. Therefore, I hope to learn more about children, who face these diseases by trying to understand their feelings to help them through difficulties. I also want to become a member of the Global Foundation for Peroxisomal Disorders to express the more concern about patients with peroxisomal disorders. AnticipationI am anxious to discover new surroundings for the first time because during my life, I have not had to experience many unbelievable situations; thus, such feeling gives me palpitations. Besides, I am also peeved about how my parents will understand my intention to participate in beneficial association.
Goal: I will become a member of the Global Foundation for Peroxisomal Disorders organization.
Objectives: Through the Internet I will contact one of the leaders of the voluntary group by the next month to only explore my possibilities.I will draw at least one of my friends through email to participate in the organization with me by the next week.I will spend at least one day a week helping affected children through the end of the year.
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